Charity Spotlight: Cystic Fibrosis Ireland
Who they are?
CF Ireland (CFI) is a voluntary organisation that was set up by parents in 1963 to improve the treatment and facilities for people with Cystic Fibrosis in Ireland. CF Ireland also co-operates with medical professionals to give maximum assistance to both parents and children/adults with Cystic Fibrosis.
CFI is supported by fundraising and voluntary contributions and are solely concerned with the well-being of people with Cystic Fibrosis.
What is Cystic Fibrosis?
Cystic fibrosis (CF) is a multi-organ disease that primarily affects the lungs and digestive system. A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections. CF also obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
The impact of CF can vary from one person to another. There are some people with CF who live until their teens and there are others that live in to their 50’s. Ireland has among some of the most severe strains of CF and also has the highest incidence (per head of population) of CF in the world, with three times the rate of the United States and the rest of the European Union. However it is important that we now have a network of centres of expertise in place and dedicated multi-disciplinary teams lead by specialised CF consultants.
What CF Ireland do
CF Ireland (CFI) is a voluntary organisation that was set up by parents in 1963 to improve the treatment and facilities for people with Cystic Fibrosis in Ireland. CF Ireland also co-operates with medical professionals to give maximum assistance to both parents and children/adults with Cystic Fibrosis.
CFI is supported by fundraising and voluntary contributions and are solely concerned with the well-being of people with Cystic Fibrosis.”
What they are doing
Cystic Fibrosis Ireland (CFI) is here to provide advice and information on various areas to members on any issue relating to Cystic Fibrosis. Advocacy can provide people with Cystic Fibrosis with the support necessary to make their own decisions and choices or deal with official processes. CFI members can therefore claim their entitlements, get to access to the appropriate services and have their voices heard. In order to alleviate the financial burdens on individuals and families with CF in different stages of life, CFI also provides a range of grants.
Contact Cystic Fibriosis Ireland:
CF House, 24 Lower Rathmines Road, Dublin, D06 A9P3
P: 1800 832 022 T: 01 496 2433 F: 01 496 2201
Website: https://www.cfireland.ie/