Charity Spotlight: Cystic Fibrosis Ireland
Who They Are:
Cystic Fibrosis Ireland (CFI) is a voluntary organisation dedicated to improving the treatment and facilities for people with Cystic Fibrosis in Ireland.
Why They Started:
CFI was established in 1963 by parents and relatives of individuals with Cystic Fibrosis (CF). The organisation was founded to provide support, information, and advocacy for people affected by CF, a genetic disorder that affects the lungs and digestive system and to which there is no cure.
Over the years, CFI has grown significantly. In the early days, the organisation focused on raising awareness about CF and the challenges it posed. This included advocating for better healthcare services, which were minimal at the time. The efforts of CFI led to increased recognition of CF in the medical community and among the general public.
Today, we still focus on awareness raising, lobbying and research as well as providing a range of practical supports aimed at improving the lives of the people in our community
CFI are not government funded and are supported solely by fundraising and voluntary contributions.
What They Do:
CFI provides a range of services and support for people with CF, including exercise, transplant, and fertility grants for our members.
We fund new CF units across the country, featuring dedicated in-patient, day care, and out-patient facilities.
We engage in advocacy to shape government policy. CFI also funds medical and scientific research aimed at understanding, managing, and treating CF, and supports specialist multidisciplinary posts in hospitals nationwide.
We offer advice, information, and advocacy services, along with regular updates on new treatments and developments via our website and the quarterly newsletter. Additionally, we work to raise public awareness about CF both nationally and internationally.
Their Charity’s Plan for the Vhi Women’s Mini Marathon:
CFI will have a based for all our participants in the Vhi Women’s Mini Marathon at the D2 Harcourt Hotel on Harcourt Street. You can join us before the event with a cloakroom and toilets available. We will have water and snacks available before the event and don’t forget to get your photo taken.
After your 10k, join us and relax with food and drink provided and some music to ensure you can relax and enjoy the afternoon with your friends after your 10k. We are really looking forward to seeing you all on June 2nd and thank you for supporting people with CF,
It is still not too late to join us so if you have not done so already, SIGN UP today @ www.cfireland.ie
Contact Info:
Cystic Fibrosis Ireland
24 Lower Rathmines Rd, Rathmines, Dublin 6
Fundraising@cfireland.ie // 01 4962433
Website: www.cfireland.ie
Instagram: CF_Ireland
Facebook: Cystic Fibrosis Ireland
For more information, email Hazel at hdoran@cfireland.ie